NORA Registry
A multicentre registry platform for rare and high-impact neurosurgical conditions, designed around harmonised variables and meaningful longitudinal outcomes.
Open project →NORA projects combine clinically meaningful questions with structured data, collaborative cohorts and quantitative methods. Each programme is designed to grow as the lab develops.
From multicentre registries to patient-reported outcomes, prediction and translational collaborations, our portfolio spans the full path from data collection to clinically useful evidence.
A multicentre registry platform for rare and high-impact neurosurgical conditions, designed around harmonised variables and meaningful longitudinal outcomes.
Open project →A standardised view of early postoperative recovery, complications, readmissions, reinterventions and other clinically actionable events during the first 30 days.
Open project →Longitudinal patient-reported outcomes before and after neurosurgical treatment to understand recovery from the patient’s perspective.
Open project →Patient-centred and clinical outcome research across the brain tumour pathway, from surgery to functional recovery and onward treatment.
Open project →Clinical, functional and patient-reported outcomes after degenerative and complex spine surgery, with emphasis on durable benefit and recovery trajectories.
Open project →Development and external validation of clinically interpretable prediction models for risk, recovery and personalised decision support.
Open project →Collaborative translational research on the microbiome in neurovascular disease, including cerebral cavernous malformations and related outcome questions.
Open project →Collaborative research on access, quality, safety and meaningful outcomes across health systems with different resources and care pathways.
Open project →Outcomes research for older adults, integrating frailty, cognition, functional reserve and patient priorities into neurosurgical decision-making.
Open project →Several NORA programmes are deliberately structured for collaboration across institutions. We aim to use shared definitions, transparent governance and clinically meaningful follow-up so that rare conditions and heterogeneous populations can be studied with sufficient scale.
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